Medinfo Health Directory- Conditions and Diseases > Chronic Illness

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Starbright Foundation
Features empowerment programs for seriously ill children. Includes chatrooms, videos, comic books, and cd-roms.
http://www.starlight.org/site/c.fuLQK6MMIpG/b.1...

Pain and Chronic Illness in Children
Short paper on the importance of pain management.
http://www.touchbriefings.com/pdf/14/lth031_r_c...

Youth in Transition
Article on transitions in youth with chronic health disorders advises their caregivers in assisting to gradual independence and self-management.
http://www3.bc.sympatico.ca/steeksma/Medical/tr...

Bandaides and Blackboards
Supports kids, teenagers and adults who are dealing with having a medical problem. Advice about teasing, what to expect in a hospital, poetry, and shared stories.
http://www.lehman.cuny.edu/faculty/jfleitas/ban...

The Child With a Long-Term Illness
AACAP Facts For Families describes the risk for developing associated emotional problems as the child must must cope with a disease that is here to stay and may even get worse.
http://www.aacap.org/publications/factsfam/illn...

Dealing With a Health Condition
Explains teenagers how to cope, to take control, deal with others.
http://kidshealth.org/teen/your_mind/problems/d...

Shared Vision
Complete article (also as PDF) on longterm needs, financial and medical planning.
http://pediatrics.aappublications.org/cgi/conte...

Children and Grief
Discusses how children handle grief and loss and which signs indicate they have difficulty coping (AACAP Facts For Families).
http://www.aacap.org/publications/factsfam/grie...

What is a Chronic Illness?
Explains to children what their ill friend or relative experiences and what they can do themselves.
http://endoflifecare.tripod.com/kidsyoungadults...

Adolescents Psychological Complications of Chronic Illness
Information from The Child Health Library of Children's Hospital of Pittsburgh.
http://www.chp.edu/greystone/mentalhealth/pcci.php

Promoting Resilience in Youth with Chronic Conditions and their Parents
Paper on family centered care, describes impact, principles, assessment, healthy family functioning.
http://www.allaboutkids.umn.edu/kdwbvfc/FamilyM...

Teenagers and Coping with Chronic Illness
Tips and strategies for parents with newly diagnosed teenagers.
http://www.irishhealth.com/?level=4&id=...

Parental Advise on Coping with Chronic Illness of your Child
Tips how to explain, deal with emotions, use discipline, keep a family routine, and cope with strangers.
http://www.parenting-ed.org/handout3/Specific...